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Put it down to experience ... Options
Glenys-H
#21 Posted : Wednesday, May 26, 2010 8:34:52 PM Quote
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Joined: 12/4/2009
Posts: 336
Dear Lyn, I,m sorry this has happened and I agree that you shouldn't stop posting. You help us all on this Forum with your invaluable contribution gained from your life experiences. You take care. Glenys.x
Damned76
#22 Posted : Wednesday, May 26, 2010 8:44:51 PM Quote
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Joined: 12/3/2009
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Dear Lyn

I can't add much more to what's already been said but agree that it is a devious and underhanded trick to send some intimidating anonymous message. I have always found your posts informative, supportive and funny. Don't stop posting. The forum wouldn't be the same without you.

Julie xxxx
alison_o
#23 Posted : Wednesday, May 26, 2010 8:54:07 PM Quote
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Location: TYNE AND WEAR
Aww Lyn,
Thats blooming awful, was quite shocked when I read your post - that is very scary it being anonymous too, yes I'd report it to NRAS, I cannot add anymore than what has already been said, Do keep posting though, Such a shame that someone can do this, very cruel indeed. Take care, Alison xxx
Calmwater22
#24 Posted : Wednesday, May 26, 2010 10:01:59 PM Quote
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Posts: 1,740
Dear Lyn
so horrid to read this
hope you have reported this to NRAS its not accepatble.
bless u for posting so ask who ever to come threw and respond to u.
how horrible.
you are such help and support to us all ive been elarnign such alot from your reples to members. which we know you share threw your own painful ra sufferings over many years.
its much apreciated do hope you can feel suported enough to re post again .


sending you hugs.
melly
cuddly cats make my world seem so much more fun
Sheila-R
#25 Posted : Wednesday, May 26, 2010 11:13:53 PM Quote
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Joined: 1/29/2010
Posts: 264
Lyn, please keep posting, you've been such a help, the way you explain things is brilliant , your support is great, and your advice is invaluable, please don't let whoever has done this stop your contributions, just get nras to get to the bottom of it, and please please keep posting.
Thinking of you
Sheila
MaryLewis
#26 Posted : Thursday, May 27, 2010 8:14:15 AM Quote
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Posts: 585
Hi
deleated the last post spelling mistakes were awful
so will write it again
Hi Lyn
see what you mean about the e-mail
can you ask NRAS to help you to see who sent it to you?
is this person a bit of a coward? the answer is YES they are
take care
Mary L
Ailsa-H
#27 Posted : Thursday, May 27, 2010 8:39:03 AM Quote
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Joined: 3/4/2010
Posts: 576
Lyn, just wanted to say how sorry I am that this has happened. I have only been a member since March but your responses have always been a fantastic mix of advice, encouragement, experience and friendship.

I can understand how hurt you are to have been misunderstood and maligned in this way, but please do not let it stop you from carrying on with your tremendously valuable role on here. Personally, I feel a little bit lonelier today, knowing you will not be posting. Your companionship on here means so much to so many. You are in my thoughts today XX Ailsa
Paula-C
#28 Posted : Thursday, May 27, 2010 9:28:00 AM Quote
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Posts: 838
Location: Nottinghamshire
Lyn, I'm so sorry and shocked to read your post.

You've had RA for 22 years, have so much knowledge and experience of it, been there and got many, many T shirts. You aways give good, honest advice to people. When I say honest I personally like to know the truth about things and I'm sure that others appreciate it as well.

I can speak up about this because you replied to something I put up about my feet and this made me go and make an appointment to get it sorted. Without your input I wouldn't of done anything about it.

The NRAS should be involved in this and I hope that you do try to find out who this person is.

Keep posting Lyn. WE NEED YOU!!!!

Take Care

Love Paula x x

annamaria
#29 Posted : Thursday, May 27, 2010 11:26:04 AM Quote
Rank: Advanced Member

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Joined: 12/3/2009
Posts: 154
Hi Lyn

I am so very sorry to hear about this happening to you and cant imagine why for the life of me. Your replies are always so very helpful, empathic and full of knowledgeable information which clearly comes from you being a long term RAer as I am.

Though I have no idea of the content of the email, anything abusive on a forum must always be reported, so do forward it to NRAS they would want to know.

I havent posted much at all lately because of serious ongoing health problems but always wish to support fellow forum members, that is what this is all about.

I feel really sad that this sort of thing has happened again and may put people off posting on the NRAS forum, where they are of such help and mutual support. I know I now prefer to post less but always wish to support my friends on here.

I hope that the support you read in your thread will reassure you. We are all behind you 100%.

Take good care,
Liz
xx

rheumatoidymummy
#30 Posted : Thursday, May 27, 2010 1:28:28 PM Quote
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Joined: 12/7/2009
Posts: 96
Location: Buckinghamshire
Poor you Lyn, what a horrible thing to happen. Your posts have always been friendly and informative - as a relative newbie to RA (I have been diagnosed for less than 2 years) I read your posts looking for the 'voice of experience' - you certainly have an awful lot to offer those of us who are seeking support so please don't leave us! I have wondered for a long time looking at your profile picture if we met in person at the latest NRAS AGM, if it was you then you definately don't deserve this sort of abuse, you were so warm and friendly. Please don't take this unpleasant event to heart.
xx
joeyvt
#31 Posted : Thursday, May 27, 2010 1:37:22 PM Quote
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Joined: 1/7/2010
Posts: 441
Location: Bristol
Lynn,

PLEASE don't stop posting! I know I have personally benefitted from your posts, not only to my own questions, but in response to other people's concerns.

Our little forum is a mini representation of the world at large and there will always be those who feel they have the right to question someone's well-intentioned advice or to judge. And to do it anonymously is just cowardly! Please do not take it to heart and certainly don't allow it to change the way you view the members of the forum or your interaction with everyone here.

There seems to have been quite a bit of this going on in the past few months and it's a pity because it can be very devisive and I suspect the forum has lost regular posters as a result. Very sad.

Please, please don't let us lose you too! Sad Sad

Joanna
Damned76
#32 Posted : Thursday, May 27, 2010 4:10:33 PM Quote
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Posts: 1,081
Hi Lyn, hope you are ok. Look at all these lovely messages of support - come back to us! Hope you have conacted NRAS.

Julie xx
Kathleen_C
#33 Posted : Thursday, May 27, 2010 4:21:41 PM Quote
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Joined: 12/3/2009
Posts: 1,689
Location: Durham
Hi Lyn,

So very sorry that this despicable thing has happened to you. I agree with others who have said you must forward the abusive mail to NRAS - it has happened to at least two other members, so one or more people are trying to spoil things on this forum.

Your posts are friendly and informative - I joined the forum to find out things about RA as I knew no-one who had it. It has become a great support to me, and each and everyone of us benefits from the advice, the information exchanged, and the humour.

I hope you don`t stop posting - it`s not fair that you should even have to consider doing so : you are not the person who is causing distress and anger here.

Take care,

Kathleen x

BarbieGirl
#34 Posted : Thursday, May 27, 2010 5:33:11 PM Quote
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Posts: 1,110
Location: London
Dear Lyn, only just seen your post. I am so sorry whoever this person is must need some sort of counselling. Every time I post a question etc the firs thing that comes into my head is "I hope Lyn sees this and replies" you know so much!! and are willing to share your knowledge with us, and for that we are VERY grateful!!! If anyone is serioulsy upset why not approach you with their name? It just shows how patheric they are, and I hope they see all these replies from us, as to how much we rely on you. Dont you dare stop posting because of this!! Dont let this person stop you from being you, and from helping the rest of us, we cant manage without you, honestly. Thinking of you, and hoping you are coping with all this. I hope it doesnt bring on a flare. Lots of love x x x
BARBARA
AnnieB
#35 Posted : Thursday, May 27, 2010 7:46:02 PM Quote
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Joined: 5/19/2010
Posts: 384
Dear Lyn

This is absolutely awful and what they call cyber bullying and something I thought immature school children did. I'm having problems posting so sorry I didn't post earlier, but read all the comments and you can see how much warmth everyone has for you. As a newbie you have given me so much advice and this has really comforted me, us newbies need you there is a new one tonight Maggie I'm sure you could help her. Please don't let this person drive you away for to long, plese come back soon, we need and want you back. Anne x
lyn2
#36 Posted : Thursday, May 27, 2010 8:12:10 PM Quote
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Joined: 12/10/2009
Posts: 653
Location: Notts
Dear Lyn

I'm sorry that you have been targeted in such a cowardly and spiteful way. Please don't let it put you off posting and giving your valuable advice to us all.

Lyn
Jan
#37 Posted : Thursday, May 27, 2010 8:12:58 PM Quote
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Joined: 12/4/2009
Posts: 259
Lyn,
I would just like to agree with all of the above sentiments.
Please don't just put it down to experience, this needs to be stopped.
Someone is clearly suffering mental health problems and needs to be stopped from doing this.
lots of love
Jan xxx
LynW
#38 Posted : Thursday, May 27, 2010 8:36:28 PM Quote
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Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Guys!

Thank you so much for the fantastic posts from you all; I am completely taken aback but so encouraged by your friendship. I was going to reply to each of you individually but now realise, many posts later, that might actually take quite some time, so perhaps not! I have read each post and value your input and common sense approach. This ‘incident’ goes to prove that this really is a community of friends in every sense of the word and whatever people do to try to break that down serves only to make us stronger as a group.

Having quickly got over the initial shock of unwelcome mail in my inbox, made worse by the fact that I was still half asleep so found it difficult to take in, the person who has actually sent the email has really done me a huge favour! Yes ... YOU out there! It has opened my eyes (and no doubt theirs if they are following the posts) even more to the moral support offered by this fantastic group of people. It has brought us together in a pageant of unanimity. Today I feel so inspired and motivated it has almost been like a kick up the proverbial!! Blink

Last night I got my I.T. son onto the case; he is currently studying forensic computing so in house knowledge was put to the test. The account for the email address used, a ‘yahoo’ one, was ‘disabled or discontinued’ by 7pm. It looks as though the email was sent and the account deleted. A couple of calls established that it was sent from an I.P. address that was communal such as an office, school, hospital etc.

I have spoken to both Gail and Sally at NRAS, what lovely ladies they are ... thank you so much for your time, I appreciate how valuable it is. They had seen my post and have been keeping a vigilant eye for developments. NRAS records have been checked and there is nothing registered under the address used or in the name which formed the address. They have checked for possible derivatives in the name but nothing has shown up. The email itself gives no clue to identify the ‘sender’ either in content or in writing style. However, it seems they may have had regular access to the forum to gain the information used as I deleted my email address weeks ago. I will continue to be heedful but do not intend to pursue further at this time. BUT any more emails of this nature will go directly to NRAS and the police.

Thank you all once again for so much support which has been truly amazing and so very welcome. Right now a brew and then get my youngest son, Louis, finally organised for his China visit leaving at 4.45am!! Tomorrow ... back to business as usual!!

Love Lyn x

P.S. NRAS look at the 'forum' daily to keep an eye on things and will continue to be watchful. Believe me they are thorough ... and quite familiar with my posts!! Scared But, that is good news, we are not aloneThumpUp


My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

Glenys-H
#39 Posted : Thursday, May 27, 2010 8:51:49 PM Quote
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Posts: 336
Thanks Lyn, you can see how much it means to all of us. x
AnnieB
#40 Posted : Thursday, May 27, 2010 8:52:20 PM Quote
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Joined: 5/19/2010
Posts: 384
Lyn Welcome back Anne x
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